I can't be there as much as I wish as I have to care for Olly's little sister Isabelle who is only a few months old. So Michael his father has opted to stay by our son's side night and day until there is hopefully some improvement.

However this will be deemed more difficult as time goes by because eventually Michael will have to resume back to work. Although he has been granted leave on compassionate grounds, at the present; but for how much longer he can stay off work before his money is stopped we don't know. 

So you can understand that the main concern for us as a family is funds, as we don't know the time frame it will take for Olly's condition to improve.